While the UK and world adjust to what the death of Queen Elizabeth II means for the monarchy, many of us will be reflecting on our private griefs. For some, the deaths of our own beloved family and friends may have occurred years, months or perhaps only days before the Queen’s. While adjustment to the
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In May we held our final Needs Rounds Workshop. One of our lay advisors (patient and public involvement and engagement) Margaret Ogden, has created this poem from her reflections of the workshop. You can see reference to all kinds of elements including team members, patient/public involvement (PPI), breakout discussion groups and our illustrating artist Cassandra!
My name is Irene Soulsby and I was invited to participate in a University of Stirling research project called “Needs Rounds”. I am one of three public representatives (often known as a “PPI”) where we are able to give an opinion and share our personal experiences. I have written this blog for Dying Matters Awareness
Photo licence by CC BY-SA Everyone should have the right to high quality person-centred care at the end of life, regardless of their circumstances or where they live. Despite this, care home residents often don’t get access to specialist palliative care. Improving access is pertinent given that care homes increasingly provide care for people at
This Blog is published during Dying Matters Awareness Week – an annual reminder to pause and think about why dying does indeed matter, and to continue the push to engage people more in discussions about death, dying and bereavement. Dying has really mattered in care homes in the past year. Dying has always mattered on an
How I became involved in Patient and Public Involvement I like to think that patient and public involvement (PPI) for me was no accident. I had been a volunteer as a child and throughout my adulthood. At senior school, I supported a friend of the family to learn braille and I also volunteered once a week
This photo is licensed under CC BY-SA Poor end of life care exposed by the pandemic Covid-19 has had devastating effects on care homes across the UK. Disproportionate numbers of excess deaths have been recorded amongst care home residents and there are increasing reports of people dying alone. Discriminatory responses have included transferring older adults from hospitals to care homes, pressure to use do not attempt resuscitation (DNAR) / CPR orders, rationing according to
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